Over thinking

I’ve been neglecting my blog for a couple of weeks. It’s not that I’ve not wanted to write I’ve just not had the energy or anything of substance to write.

Things are the same as usual for me, I have a day or two of “normality” and then bam out of nowhere it comes back and slaps me round the face.

I don’t always know what causes these big dips in the road sometimes it’s easy to figure it out.

I overthink every situation, I want to say so,eating I build myself up to say something then I back out. Then I beat myself up for not having the balls say what I wanted to say. That’s when I get the feelings of depression.

Last week for my youngest boy we had a speech and language review and a portage review, I was anxious in a good way because since the youngest was was last seen by them he’s made so much progress and I couldn’t wait to tell them. So speech and Language turned up and she was so pleased to see his progress and he independently signed “more.” I was so happy I’ve been working my arse off for months to get him to sign and he did it. Relief or what. Only thing is portage didn’t turn up, no call no no apology the next day nothing. I was pissed because she hasn’t seen my little one since July. I wanted to share the progress he has made and get new targets for him. I called the school and I’m still waiting for a call to rearrange.

All this set off a stream of anxiety thinking are they going to continue their support?

If not can they at least visit him and tell me that this service is no longer needed. It also got me thinking that because he’s doing so well are all the support services other then speech and language going to stop? He goes to an early learning support provision 2 hours a week. There they do tactile play, sensory play, help him with his speech and language targets and help him with his development. They also teach him sign language he loves going and they are brilliant. I don’t want these sessions to stop just because he’s doing well. He’s doing well because he has these things in place. I don’t want these to stop just because he’s now making progress. I need these targets so I can get him back up to where he should be. He’s approx 9 months behind.

On Thursday after a support catch up visit at home I wound myself up, I built myself up to get something out in the open and tell the person what I would be working on with the new support from pathways. I couldn’t do it, I couldn’t say anything then I got pissed off with myself. I felt very low afterwards beating myself up. Saying all the anxiety causing issues out loud I felt so stupid saying them because there’s been no say of services stopping it’s just my stupid anxiety.

3 years ago I was so bloody different. Before the heart defect diagnosis in my youngest I never needed any support, I never needed help, it wasn’t suppose to be this way. I was suppose to have my baby and come home and be a family of 4. I wasn’t suppose to have anxiety and depression and need all this help. It’s like I’m sick of needing help but at the same wondering what the fuck I’d do without these people now. It just wasn’t suppose to be this way. I miss the life I could have had, the life I had with my eldest just me and him and our family. I’m so grateful I have the support I just wonder what it would have been like to not have needed it.

I’m also grateful for my little un biological sister V. I can always be honest with her and tell her how I’m feeling. She gets it she understands and she doesn’t mince her words. She snot bitchy she just tells me it straight and tells me what i need to hear. I love her and I’d be lost without her.

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Emotional

It’s been a tough emotional couple of days. I opened up about something from a long time ago and it’s caused an emotional upset with my mental health. I went to see someone yesterday and opened up briefly about something that happened a long time ago. I managed to keep my emotions at bay for most of the day yesterday the boys being the distraction. Once they were in bed the emotions poured out of me. It was a very difficult thing to do even just mentioning it very briefly. It’s had a massive impact on how I’m feeling.

After a rough nights sleep last night I felt awful this morning. Tired and completely drained. I shoved on some jeans and a hoody and I don’t do scruffy casual I just couldn’t be bothered. I took the boys to school and nursery and then the emotions got the better of me again. I went and sat by the river crying. Debating wether to pick the phone up to the peer link workers or not. I did it took a while but i did. I got to their office just a short walk from where I was sat again it took me a few mins to get my ass through the door. My heart was beating so fast my breath was trying to catch up. I don’t know why I was so afraid of going in there other than knowing I’d have to tell them why I was so upset. Slowly I made it up the stairs and the room was full of people (the people who worked there) and I couldn’t say anything until they had gone but because they can’t work alone there was one other left in the office. I didn’t want to talk in front of her wether they all work together or not. We left the office to go chat by the river and after a while I told her everything. More in depth then what I told the person yesterday. I cried and I was shaking as I spoke. I told her everything I needed to say it like it was not that makes it any easier. I didn’t want to just say this thing happened and that was it. I needed her to know my story.

I am emotionally drained. I’m tired physically and mentally. I spent my afternoon writing in my notebook. Poems and song lyrics. The things I connect to i needed to get my head around things so I put my thoughts into words. It’s how I work. It’s what helps sometimes. Just like with the blog it helps get my thoughts down into words knowing someone somewhere will read it and maybe connect to it somehow.

No motivation 

Reading my last blog post my little sister V offered to have my boys for a few hours on Sunday so me and the husband could go out without the kids. 

When I agreed to it it seemed like a great idea and very thoughtful of V to offer out the blue. Even though I slept relatively well I woke up still tired. Almost like I’d not slept. The kids woke up stupidly early and to be honest I just wanted to stay in bed. I didn’t want to get dressed, I didn’t want to go out. I don’t know what was going on. 6 days a week I get up I get the kids clothes sorted, I do the washing, fold clean clothes, feed the kids and get them where they need to be on time without fail. On a Sunday generally I stay at home in my pjs and I do nothing. 

I got upset and wound up and made myself crazy about getting ready to go out. I just didn’t want to go but I don’t know why. What’s so wrong about going to lunch with my husband? The time we were to drop the boys off would have been the time my youngest needed a sleep. Knowing he wouldn’t settle for anyone I decided to let him sleep at home in bed. I cried as I cuddled him. Thinking I’ll never hear the end of it if I decide to not go. My husband will hold this over me for life. I try to tell him I’m not feeling great he thinks everything can be solved with sex, a hug ir watching a film. None of which i am remotely interested in. I want understanding, I want him to stop pestering me and pressuring me to spend time with him. Keeping my shit together all day is hard work. Nursery, school runs, everything else is tiring. By the time the kids are in bed I’m knackered. I just want to be left alone to lay in bed, watch tv, blog, write or draw. By 9-9:30 I’m ready for sleep.

I know it sounds selfish but I make sure my kids come first in every desicion I make every day. So when they are in bed I get to be selfish I get to think about my needs and what I want. So that’s what I’m going to do. I don’t get much time to myself so I evhiy by evenings to myself. 

This week I meet my sons health visitor for a chat and a catch up while he’s at nursery. This causes anxiety because I’m used to seeing her at home while he’s around. I also meet my peer link worker for the second time also causing anxiety. I hate it I really hate it. 

Heart week

So this is a hard time of year my baby boy 2 years ago was admitted to hospital because his oxygen sats dropped too low. I’m spilt in 2 because there’s the logical side of me that sees the immense progress he’s made since. A year ago he wasn’t walking or even crawling yet now he’s confident on his feet after learning to walk in July. Then there’s not so logical side of me that remembers every single part of every single day 2 years ago. It’s the loneliest i have ever felt in my entire life. It’s the most terrified I’ve ever been aswell, you hand your baby boy to strangers and you have to entrust them with his life. Longest 5 hours waiting for news in my life. 

I know he lived, I know he’s a healthy little boy etc etc I know all this. That doesn’t detach that it was still the hardest time I’ve been through. It’s not something you ever forget and its boy something you can get over in 2 years. It was a traumatic event and anyone who’s been through any trauma knows you don’t just get over it. Of course in years to come it will get easier and the awful memories and feelings of loneliness with fade. I don’t feel completely down I just remember how hard it was. 

I find it hard to explain to people who haven’t been through it. Sometimes it’s like banging my head again the brick wall it’s pointless and it hurts. I don’t feel as bad as I did a year ago or even beginning of this year. I’m not going to let myself go down that far. I have a few days like this week where I’ve mostly felt crap with good reason. I might feel anxious and emotional this week because it’s a big week for my baby. Thursday his taster session at nursery and Friday is his heart day. The day he had 5 hours of life saving surgery to repair his heart. 

I will celebrate his day and I will as always remain proud of him but I’m also allowing myself to feel however I want to feel. I’m not pressuring myself to feel great if I don’t. I’m taking each day as it comes. I’ve recovered once and I’ll do it again I have little support around me but I have a health visitor and if needed I don’t think she would mind me ringing her. 

Another blow

So I said that the charity that was the main support for me had lost funding so they couldn’t keep going with the sessions i was going to. A friend of mine V went to a counselling session for herself today (same one that I am suppose to be starting in a couple of weeks.) she was told that she can’t be seen anymore because she’s also lost her funding. It comes as yet another blow because I’m changing my son’s nursery day specially to fit around this counselling. I was told it would be every week on a Thursday but turns out it would have been every 6 weeks. But it looks like it’s not gong to go ahead anyway. I was relying on that to make me feel better and get better from this relapse. I was relying on to open up old wounds and get rid of old demons still haunting me, but now I can’t. What the hell will I do now? How am I ever going to feel better? And stop letting my past haunt me? How will I ever be able to talk about it.. I can’t go back to S2c because that will feel like a massive failure on my part. I tried other counselling and I couldn’t do it. I’ve fucked up my only chances to get real help.

I now have this genetics appointment through for 29th September at the hospital we always go to so I don’t have to travel too far. But to be honest it’s not the travelling I’m worried about. It’s the blood tests, the questions, the results, the whole fucking process. It’s not like it’s just one appointment. It might be 3 or 4 or whatever. What if there a genetic problem? I mean come on I’ve got one child with autism and one child with a heart defect it’s gotta be somehow my fault. I created them it’s my doing. My body let my kids down. I won’t have any other children now, i can’t put myself that through any of this again. There’s a possibility my youngest as well as having the heart defect could also be autistic. I can’t deal with it. I just try to pretend everything’s ok. My head is a shed.

Having an autistic child is extremely challenging it will make you question on a daily basis what you do wrong to start a meltdown. It’s tiring, it’s frustrating, it’s draining and upsetting when I don’t know how to help him sometimes. I wanna protect him from the world who judge him because he has a sensory disability. He hates hand dryers and we have to use the disabled toilets so he doesn’t hear the hand dryers. We get stared at for using them because people presume having a disability means a physical disability. He gets overwhelmed when its crowded, he gets overwhelmed at birthday parties. It’s a daily struggle so I can’t cope with two of them being autistic. It’s hard enough with one let alone both.

The youngest with his heart defect is seeing him before his operation struggling to finish his bottles because he got breathless quickly. He constantly fed. He still gained weight but he was always feeding. He wasn’t allowed to cry for long periods of time because he turned blue. Then taking him,down to the theatre and kissing him goodbye for what you think maybe the last time. Waiting for news for the longest 5 hours of my life. Seeing him in picu hooked up to machines breathing for him giving his heart a rest. It’s something you never get over. The struggle didn’t end after surgery it’s not like surgery is a cure it’s just fixes his heart his heart will never be normal he will always have tetralogy of fallot. This is why I will never have more children this is burned into me for life. I can’t take the risk of having another child with a heart defect.

Letting myself down

After my last post was so positive I’ve been avoiding my blog. Things were going really well and I honestly thought my troubles were behind me. 

I didn’t realise that anxiety is a bitch and without warning it will creep on you and attack you again. I’ve been feeling bad for a few weeks now. Not as bad as I was but bad enough to notice I’m not feeling right. I can’t get a restful sleep or when I do sleep I’m still knackered. I wake up and anxiety is there in the pit of my stomach. I wish I knew why. I maybe know part of the reason I saw a person from my past twice within days of each sighting. Since then I’ve not been right. The 6 weeks holidays have been hard and pushing me to my limit. I haven’t had a lot of time to myself, I’ve had both boys for 5 weeks and the last two weeks my husband at home too. 

We had 5 days away at my in laws it was nice but it wasn’t a holiday. I missed having my own space and my home comforts. They let my 6 year old get away with murder, they gave him all the attention he craved and then he went off on one when he no longer got it. It was hard work. 

We got home and we had a massive fight once the kids were in bed. Same fight we always has, he thinks I do nothing while he goes out to work etc etc. I was fuming and upset I threw my wedding ring at him and told him I was done. I packed a suitcase full of his clothes told him I wanted him gone. He never tells me anything, I tell him stuff it’s met with eye rolling and disgust. I’m hanging on by a thread. I keep trying and trying to make it work but I don’t know how much longer I can keep going. I’m giving it one last go then I am done permanently. It’s hard feeling the way I do because even though I’m trying to not feel down and anxious I can’t pretend. I am fighting a losing battle everything around me just feels like it’s ready to fall apart and here I am trying to keep it all together. 

I feel like a failure for having everyone tell me how well I’d done and how far I’d come and now to admit to them I’m not doing so well feels like a massive step backwards. Even though there’s been little no appointments I still have a lot going on. I have appointments waiting to be come through, once September gets here portage starts back up, I have to settle my 2 year old into nursery and wait for genetics to send an appointment through. I also have a speech and language review for my 2 year old coming up in the next month and a meeting with all professionals so it’s still a lot to juggle. 

I’m letting everyone around me down while once again I struggle with anxiety and depression. My main source of support from the charity has stopped they have no funding so that it’s my support has ended. The family support worker was going to come with me to genetics appointment because I didn’t want to go alone. She was there when I felt low and needed someone to talk to now I feel completely in my own. While I don’t need as much support as I did I still need that person there. I hide things away from family and close friends because I’m ashamed that it’s getting to me again. I held off my blog, my safety net because I felt like a fraud saying how well I’d done to now feel so shit. There’s so much going on not even I can explain it. I just keep it all to myself. I’m lucky that my youngest has a health visitor still (she’s a new one) been involved since before Christmas and she’s lovely she’s really supportive. I know she’s not gonna be around and able to visit as I need so I don’t know what I’m going to do going forward but I need to do something because I’ll be damned if I’m going any further down than I am now. 

Reading 

Reading back through some of my blog posts at the end of last year I realise how much of a dark place I was in. Reading the things that went through my mind on a daily basis. We’re almost 8 months into this year and already things have dramatically improved for me. 

By the end of April I got my wish of being depression and anxiety free after I got through counselling, I got my eldest son’s autism diagnosis. I re connected with my mum and younger sister. I think once my thought pattern changed, I realised I was never going to change them. If I was never going to change them why bother trying? I made more effort and in turn they did too. They accepted my children are different and made more effort with them too. I see them on a weekly basis now, there’s more communication between us. 

My life has improved no end since April. Hearing the news I had waited 2 years for finally freed me from the weight of feeling so shit. I love how my life is and it’s not perfect it’s still hard work but I don’t hate my life. I don’t think about clothes 3 days in advance. I don’t hold back on what I say anymore afraid of hurting people’s feelings or them not liking me anymore. 

Things are heading in the right direction. I’m starting to understand my children more. My 6 year old with his needs and wants and how he has to do things his way, I’m teaching my youngest son makaton, he’s copying things we do when we teach him. He started walking 3 weeks ago and he’s got such a funny character to him. 

Life is what you make it, you can cry, kick and scream that you haven’t got perfectly healthy “normal” children or you can grab life by the bollox and say I’m doing a bloody good job at raising my children each with their own individual extra needs. Things can only go forward from here. No more looking back. ✌🏻