So yesterday was my youngest boys 2nd Birthday. I gotta admit the night before I was a little bit emotional. He’s growing up he’s 2 now. Sad reality that I no longer have a baby. His birthday was lovely I really enjoyed it, we had a really nice birthday party for him and the kids loved it.
Today I’ve kept myself busy because I don’t want to think about tomorrow and what it meant for us 2 years ago. I’m trying so hard to stay positive and think of all the amazing things we’ve done since then. My counselling sessions are helping me see things in a different light. I’ve been told that I’m punishing myself and making myself re live it instead of moving on because I blame myself for his heart defect. My little boy has done brilliantly well since we were told about his heart defect. This time last year he could only sit up he couldn’t sit himself up, he could roll over, he couldn’t put his feet on the floor, stand or crawl. This year there’s a massive difference he can do all those things confidently now. He’s even moving around furniture to get to places. He’s not walking or talking yet but this time next he will be.
I’ve shielded his diagnosis for so long because I didn’t want him treated any differently to other children. I didn’t want sympathy for him and I didn’t want attention on me or him. I’m becoming more open about it now sharing more about him. Not because I’m stuck in the past because I’m trying to think and look to the future.
2 years ago was an extremely difficult day for me. Being told about a heart defect in your baby that’s only 2 days old. It’s a shock to the system. It wasn’t ever something I could prepare myself to hear. He’s come so far and I’m so proud of him and I’m trying to overcome this emotional side of it. I need to say the words out loud without crying or feeling tearful. I need to believe that I did cause this, I was not to blame and I need to stop punishing myself thinking I let my baby down. I need to stop being jealous of other children’s milestones and be grateful for the ones he’s hitting. I need to stop being jealous of people with healthy babies. I need to stop getting angry at people for making big dramas out of Childrens general ilnesses. They didn’t live through what I did. They don’t understand.
One thing to help me find my future was the fact that the cardiology hospital appointment went well. His heart function is good, the residual vsd still there but causing no problems and we don’t need to go back for 13 months. Onwards and upwards. (Hopefully)